I missed writing the last couple of days, so will try to catch up.
On Tuesday we had an appointment to have an Echocardiogram on Dregans heart. He had one when he was critically ill earlier this year, so knew what to expect. It was slightly different, but he coped amazingly well. He spent the whole time watching the monitor - looking at his heart, and his heartbeat! The gel was cold and the stickers at the top pinched a bit, but he was ok.
I had no idea what I was looking for, so can't comment on it really!
He was great on the journey to Sheffield, but his hands 'froze' up about 5 times. Not even when using them, at one point he simply rested his hand on Pete's chair, and it seized up. Was quite worrying, it was hurting a bit, and his hands were nice and warm for a change!
He went a bit internalised in the waiting room, too many people, he was sitting with his head on my shoulder. He really does change when we're in situations like that!
Next was the fitting of the heart monitor. he had to take his shirt off again, and then the nurse ran out of the room to see another patient (!!) so he got a bit uncomfortable and wanted to get dressed. It was cold, so I covered him up again. When the nurse came back, he was split between talking her head off about rubbish, and withdrawing and hugging into me. But, he took in everything she said, and coped with having the monitor fitted really well!!
In all this time, Pete was trying to park the car! Was a nightmare - he finally found a space and then I called him to say we'd finished!!!
That night was one of the best nights he's had in ages - he had loads of energy, walked the dog with Pete, didn't complain of his legs hurting, and even played some games with us. Managed with the monitor very well, and went to bed no problems.
His eyes went 'a bit fuzzy' in the morning, but other than that (and his hands kept seizing up, was very persistant!!) no problems.
The monitor was a 24 hour monitor, and Pete went to collect it to take it back to the hospital. Apparently Dregan was complaining of his heart hurting at around 1.15ish...BUT the monitor hit 24 hours at 11.30 - I don't know if it will have recorded that incident (I hope it did)!
So, now to wait for the results! We received an appointment with the Consultant Cardiologist at the 'Inherited Cardiac Conditions Service' yesterday, but it clashes with Dregans Interim Statement Review, so am waiting for it to be changed. Should be soon though, they seem to be speeding it all along!
Too many appointments, not enough days!
x
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